Job summary
The function of this research nurse post is to provide support in setting up the UK Silicosis Registry at Imperial College. There is an emerging UK epidemic of silicosis, a form of occupational lung disease. This is a combination of silicosis from artificial or engineered stone and from natural stones. The natural history of silicosis in the UK is not well described and there is no known treatment.
Main duties of the job
You will support the set-up and delivery of the UK Silicosis Registry at Imperial College, a national initiative designed to better understand and improve care for patients affected by this emerging occupational lung disease.
You will enter clinical data into the REDCap database for patients attending the Royal Brompton Hospital occupational lung disease clinic, reviewing electronic records to ensure accurate data capture.
You will also assist and guide clinical staff at other UK centres as they contribute their own patient data to the Registry.
Working as part of a multidisciplinary team, you will attend the weekly occupational lung disease clinic to support patient recruitment.
Alongside the Clinical Nurse Specialist, you will help create educational resources for patients, organise focus groups, and contribute to Patient and Public Involvement and Engagement activities.
The role also involves building connections with other interstitial lung disease centres to strengthen referral pathways into specialist occupational lung disease services
About us
Welcome to Imperial, a global top ten university where scientific imagination leads to world-changing impact.
Join us and be part of something bigger. From global health to climate change, AI to business leadership, we navigate some of the world's toughest challenges. Whatever your role, your contribution will have a lasting impact.
As a member of our vibrant community of 22,000 students and 8,000 staff, you'll collaborate with passionate minds across nine London campuses and a global network.
This is your chance to help shape the future. We hope you'll join us at Imperial.
Job description
Job responsibilities
Key Responsibilities
To take an active role in recruitment of potential study participants including attending multi-disciplinary meetings and Monday clinics.To assist in the informed consent process for participation in the study.To arrange interpreters and translators if needed.To ensure that patient participation in research is seamless and in harmony with their standard clinical care, complying with all standards of GCP and ethical approvals.To act as a contact for patients, relatives and carers who need clarification or additional information regarding the study.To provide ongoing information, education and support to patients (and their significant others) during participation in study. Clinical Research
To ensure that any documentation relating to the UK Silicosis Registry is accurately maintained.To record and report adverse events/serious adverse events which occur whilst patient is in the study to PI.To provide support for clinicians in other contributing sites. To attend meetings relevant to the nature of the job.To liaise with recruiting sites on a monthly basis and provide support where needed.To draft and contribute to study documentation.To assist in the preparation of results of research for presentation as posters or scientific presentations. Data Entry
To review electronic clinical records of patients.To access the computer network as required to retrieve relevant information.To enter relevant clinical data on to the REDCap database.To ask for assistance from the PI if uncertainty. Clinical Responsibilities
To work as part of the multidisciplinary team and contribute to the ongoing development of the department.To be responsible for maintaining strong relationships and positive communication channels with other key personnel.To work within the CSP and HPC Code Of Conduct and scope of professional conduct.Due regard must be given for the sexual orientation, age, customs, values and spiritual beliefs of patients in accordance with 'Equal Opportunities' practices.To observe the confidentiality of patient information at all times, in accordance with the Data Protection Act.To arrange and participate in patient focus groups to understand how best to support them. Personal Education, Training and Development
To attend training courses as deemed relevant and to attend meetings and national and international conferences as appropriate.To be responsible for developing and sustaining own knowledge, clinical skills and professional awareness.
Job description
Job responsibilities
Key Responsibilities
To take an active role in recruitment of potential study participants including attending multi-disciplinary meetings and Monday clinics.To assist in the informed consent process for participation in the study.To arrange interpreters and translators if needed.To ensure that patient participation in research is seamless and in harmony with their standard clinical care, complying with all standards of GCP and ethical approvals.To act as a contact for patients, relatives and carers who need clarification or additional information regarding the study.To provide ongoing information, education and support to patients (and their significant others) during participation in study. Clinical Research
To ensure that any documentation relating to the UK Silicosis Registry is accurately maintained.To record and report adverse events/serious adverse events which occur whilst patient is in the study to PI.To provide support for clinicians in other contributing sites. To attend meetings relevant to the nature of the job.To liaise with recruiting sites on a monthly basis and provide support where needed.To draft and contribute to study documentation.To assist in the preparation of results of research for presentation as posters or scientific presentations. Data Entry
To review electronic clinical records of patients.To access the computer network as required to retrieve relevant information.To enter relevant clinical data on to the REDCap database.To ask for assistance from the PI if uncertainty. Clinical Responsibilities
To work as part of the multidisciplinary team and contribute to the ongoing development of the department.To be responsible for maintaining strong relationships and positive communication channels with other key personnel.To work within the CSP and HPC Code Of Conduct and scope of professional conduct.Due regard must be given for the sexual orientation, age, customs, values and spiritual beliefs of patients in accordance with 'Equal Opportunities' practices.To observe the confidentiality of patient information at all times, in accordance with the Data Protection Act.To arrange and participate in patient focus groups to understand how best to support them. Personal Education, Training and Development
To attend training courses as deemed relevant and to attend meetings and national and international conferences as appropriate.To be responsible for developing and sustaining own knowledge, clinical skills and professional awareness.
Person Specification
Qualifications
Essential
- Registration with Nursing and Midwifery Council
Experience
Essential
- Background in clinical practice
- Experience in managing patients with respiratory disease
- Evidence of continuing professional development
Desirable
- Previous research experience
Person Specification
Qualifications
Essential
- Registration with Nursing and Midwifery Council
Experience
Essential
- Background in clinical practice
- Experience in managing patients with respiratory disease
- Evidence of continuing professional development
Desirable
- Previous research experience
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
