Job summary
The Human Fertilisation and Embryology
Authority (HFEA) is the UKs independent regulator of clinics providing
fertility treatment and research involving human embryos. A key responsibility
of the HFEA is management of the Register, a database of information
about every fertility treatment carried out in the UK, populated with patient
data received from clinics, that the HFEA has been responsible for since 1991,
the longest running register of its kind in the world.
We are seeking to recruit to the post of Head
of Information. There has never
been a better time to join the HFEA. We are near completion of the roll-out of
our new Register and data submission system and publication of Choose a
Fertility Clinic data (Choose a fertility clinic | HFEA). We are also actively developing our
Opening the Register team to meet an increase in demand. The Head of Information is
a senior role and is accountable for our Register, our Register support team,
our Opening the Register team and IG/Records Management team.
Interviews are expected to take place on Tuesday 2nd September, in-person @ Redman Place.
Main duties of the job
You should be
a credible leader and be able to effectively manage a broad portfolio of
responsibilities, with proven experience in overseeing organisational
governance, including corporate decision making and performance management. You
should be an excellent team leader and be able to build strong and supportive
working relationships with senior leaders. You should also have the skills
required to ensure that the Register database is maintained, and data formats
prepared enabling secondary use by a range of internal and external users. This
includes working with technical experts to ensure the integrity of the database
and information received through the data submission system, PRISM, and
ensuring the data is verified and accurate.
About us
The HFEA is
the UK's independent regulator overseeing safe and appropriate practice in
fertility treatment and embryo research. We license and monitor clinics
carrying out IVF, donor insemination, and human embryo research.
This post is
offered as either office based (in which case you will need to attend the
office at least one day per week)or home based (in which case office attendance will be specified by
your line manager based on business need). Our office is in Stratford, east
London, in attractive new premises on the edge of the Olympic Park, alongside
several other health Arms Length Bodies. In addition to flexibility and hybrid
working we offer generous annual leave and pension arrangements.
The HFEA is a
member of the Community Race and Work Charter and the Disability Confident
Charter. We are committed to ensuring an inclusive and supportive working
environment that is free from any form of discrimination. We recognise that
there are real benefits of having a diverse community of staff and aim for our
workforce to be truly representative of all sections of society. Additionally,
we adopt a culture that hopes to attract and retain talented individuals that
want to work with us.
In November 2024, the HFEA was awarded People Insight's Outstanding Workplace Award 2024.
Job description
Job responsibilities
The Head of Information has responsibility for the HFEAs information
services, including the Register of treatments, the Opening the Register (OTR) service
and Information Governance/Records Management service, as well as acting as the
organisations Caldicott Guardian, ensuring that ensure that personal
information is handled legally, ethically, and appropriately, while maintaining
confidentiality.
The Register is a database of information about every
fertility treatment carried out in the UK, populated with patient data received
from clinics, that the HFEA has been responsible for since 1991, the longest
running register of its kind in the world. The Head of Information has
responsibility for the quality of information held in the database, working
with clinics and internal technical and analytical experts.
The postholder is a senior member of staff expected to lead
these services whilst supporting the HFEAs strategic objectives. The
postholder is a member of the Corporate Management Group.
The post holder will lead teams with responsibility for
specific areas:
Maintaining the integrity and security of the
data contained within the Register of Treatments.
Monitoring the quality of data received from
clinics and overseeing the register team and the performance of the team
responding to clinic enquiries. Working with clinics to solve data issues and
make improvements.
Establishing and running a data review board to consider the
information collected and any future changes, including to the Data Dictionary.
To act as key adviser internally and externally on HFEA Register
information including supporting the legal access to register data.
Overseeing the Opening the Register and
associated donor information services; enabling those entitled to access
information about donor treatment
and supporting complex and sensitive information
and enquiries
To work with others across the HFEA in considering future
outputs of our data including Choose a Fertility Clinic (CaFC)
Managing the Information Governance / Records Manager
and associated service.
The post holder will advise and work alongside the Head of
IT to help the HFEA deliver technology transformation and improved
methods for processing and managing information.
Job description
Job responsibilities
The Head of Information has responsibility for the HFEAs information
services, including the Register of treatments, the Opening the Register (OTR) service
and Information Governance/Records Management service, as well as acting as the
organisations Caldicott Guardian, ensuring that ensure that personal
information is handled legally, ethically, and appropriately, while maintaining
confidentiality.
The Register is a database of information about every
fertility treatment carried out in the UK, populated with patient data received
from clinics, that the HFEA has been responsible for since 1991, the longest
running register of its kind in the world. The Head of Information has
responsibility for the quality of information held in the database, working
with clinics and internal technical and analytical experts.
The postholder is a senior member of staff expected to lead
these services whilst supporting the HFEAs strategic objectives. The
postholder is a member of the Corporate Management Group.
The post holder will lead teams with responsibility for
specific areas:
Maintaining the integrity and security of the
data contained within the Register of Treatments.
Monitoring the quality of data received from
clinics and overseeing the register team and the performance of the team
responding to clinic enquiries. Working with clinics to solve data issues and
make improvements.
Establishing and running a data review board to consider the
information collected and any future changes, including to the Data Dictionary.
To act as key adviser internally and externally on HFEA Register
information including supporting the legal access to register data.
Overseeing the Opening the Register and
associated donor information services; enabling those entitled to access
information about donor treatment
and supporting complex and sensitive information
and enquiries
To work with others across the HFEA in considering future
outputs of our data including Choose a Fertility Clinic (CaFC)
Managing the Information Governance / Records Manager
and associated service.
The post holder will advise and work alongside the Head of
IT to help the HFEA deliver technology transformation and improved
methods for processing and managing information.
Person Specification
Managing work
Essential
- Experience of leading complex and demanding services
- Experience of developing and implementing business solutions
- Experience of managing a team
- Experience of identifying and managing risk
Desirable
- Experience of leading technical experts, including IT and/or database management
Knowledge
Essential
- Familiar with principles of information governance and records management
- Knowledge of current best practice relating to data management and reporting systems
Desirable
- Knowledge of relevant applications such as big data solutions and tools
Qualifications
Essential
- Educated to degree level or equivalent
Desirable
- Project management experience and/or qualification
- Experience and/or qualification in data analytics
Experience
Essential
- A background and experience in managing sensitive and confidential information datasets, including data quality
- Experience of using data and have specialised knowledge of regulatory practice
- Experience of leading information governance in an organisation
- Experience of strategic data management and external stakeholder management
Desirable
- Understanding of health datasets
- Technical understanding of data management and transfer systems and processes
Person Specification
Managing work
Essential
- Experience of leading complex and demanding services
- Experience of developing and implementing business solutions
- Experience of managing a team
- Experience of identifying and managing risk
Desirable
- Experience of leading technical experts, including IT and/or database management
Knowledge
Essential
- Familiar with principles of information governance and records management
- Knowledge of current best practice relating to data management and reporting systems
Desirable
- Knowledge of relevant applications such as big data solutions and tools
Qualifications
Essential
- Educated to degree level or equivalent
Desirable
- Project management experience and/or qualification
- Experience and/or qualification in data analytics
Experience
Essential
- A background and experience in managing sensitive and confidential information datasets, including data quality
- Experience of using data and have specialised knowledge of regulatory practice
- Experience of leading information governance in an organisation
- Experience of strategic data management and external stakeholder management
Desirable
- Understanding of health datasets
- Technical understanding of data management and transfer systems and processes
