Neurodiversity expert by experience (Child and Young People)

North Middlesex University Hospital NHS Trust

Information:

This job is now closed

Job summary

The successful applicant will:

be a family member or carer of a neurodivergent child or young person. They may be both neurodivergent and family member or carer of a neurodivergent child or young person.

bring another viewpoint that comes from a person's own experience.

be willing to share their lived experience in a way that promotes positive development and change, both in terms of service development, and for individual children and their families.

play a key part in the planning and designing of the new Neurodiversity in Enfield team for under 6s.

Help the team understand better the views and experiences of families of neurodivergent children.

liaise with families and carers to identify their needs and to reassure them that the team will support their child.

share appropriate information about accessing services and local support.

be expected to attend need-specific clinics (e.g. sleep, toileting, feeding etc) to support parents and carers, to guide them as to where to access the services and to provide emotional support.

Main duties of the job

We would hope that parent worker could draw upon their personal experience and knowledge of parenting or caring for a child with a neurodevelopmental condition to:

Inform clinical practice, i.e. the way the team is working

Offer support in the facilitation and development of parenting support groups.

The parent or parents would need to commit to coordinating and facilitating support groups for parents and we anticipate that the worker will participate in facilitating parenting groups and courses.

Share/teach strategies with other parents

Provide valuable contributions to regular steering group meetings and would be involved in further developing the parent worker role in the team.

About us

North Mid is part of North Central London integrated care system - consisting of the NHS and Local authority organisations in Camden, Islington, Barnet, Enfield and Haringey. As with other ICS's, we are working increasingly closely with partners and indeed many of our financial and performance objectives are measured at this system level. Whilst all organisations remain as standalone, statutory bodies we have an ICS infrastructure for making shared decisions and agreeing shared approaches.

We are proud of our staff and want to ensure their training allows them to provide excellent clinical care. We are also a training unit for medical students from UCL and St George's University Grenada, and for nursing and midwifery students from Middlesex and City Universities.

Take a tour of our hospital here

Date posted

08 January 2025

Pay scheme

Agenda for change

Band

Band 4

Salary

£26,530 to £29,114 a year pro-rata per annum inclusive of HCAs

Contract

Permanent

Working pattern

Part-time

Reference number

393-NMUH-2068

Job locations

St Michael's

Cedar House, Gater Drive

London

N2 0JB


Job description

Job responsibilities

Communication and Coordination

Serve as a point of contact between parents and carers and healthcare providers as directed.

Facilitate effective communication between parents and carers and healthcare providers to ensure seamless service delivery.

Attend clinics for the neurodivergent population and their families to provide advice, guidance and emotional support for families and carers, as pre-agreed and within the remits of the role.

Share any relevant information from parents and carers with the clinical teams during the triaging process to ensure timely and effective needs-led support can be offered.

Knowledge base

Maintain excellent knowledge of local resources, both within the NHS and outside (e.g. education, EASA, voluntary sector).

Liaise with neurodivergent people and their families to ensure the neurodiversity team continues to provide the support required by the community.

Keep up to date with current thinking in the neurodivergent community, to include preferred terminology, types of input, environmental adaptations and other relevant preferences.

Administrative Support

To ensure that all available resources are coordinated effectively.

Manage dairies and schedules, appointments, and meetings independently.

Maintain accurate records, files, and documentation related to the role.

Data Management

Collect, compile, and analyse data related to roles and responsibilities.

Keep accurate records of all conversations with families and carers.

Compliance and Confidentiality

Ensure compliance with all relevant regulations, policies, and procedures.

Make suggestions to updates for departmental standard operating procedures and guidelines.

Maintain confidentiality of information and adhere to data protection regulations.

Support and Development

Assist in the orientation and training of students and volunteers to the team.

Support continuous professional development initiatives for the neurodiversity team.

You will be required to use your initiative in all aspects of your work, to efficiently prioritise work and meet deadlines, as the service line requires.

Your duties will encompass regular liaison with the Neurodiversity Team Leader and Team.

Your dealings with matters relating to clients and staff is of a highly confidential nature and should not be divulged to another or discussed with other colleagues other than as necessary within the context of your role.

You will be responsible for ensuring compliance with Trust policies and local protocols for Data Protection, Health and Safety, Security and Fire Safety within the administration team.

Job description

Job responsibilities

Communication and Coordination

Serve as a point of contact between parents and carers and healthcare providers as directed.

Facilitate effective communication between parents and carers and healthcare providers to ensure seamless service delivery.

Attend clinics for the neurodivergent population and their families to provide advice, guidance and emotional support for families and carers, as pre-agreed and within the remits of the role.

Share any relevant information from parents and carers with the clinical teams during the triaging process to ensure timely and effective needs-led support can be offered.

Knowledge base

Maintain excellent knowledge of local resources, both within the NHS and outside (e.g. education, EASA, voluntary sector).

Liaise with neurodivergent people and their families to ensure the neurodiversity team continues to provide the support required by the community.

Keep up to date with current thinking in the neurodivergent community, to include preferred terminology, types of input, environmental adaptations and other relevant preferences.

Administrative Support

To ensure that all available resources are coordinated effectively.

Manage dairies and schedules, appointments, and meetings independently.

Maintain accurate records, files, and documentation related to the role.

Data Management

Collect, compile, and analyse data related to roles and responsibilities.

Keep accurate records of all conversations with families and carers.

Compliance and Confidentiality

Ensure compliance with all relevant regulations, policies, and procedures.

Make suggestions to updates for departmental standard operating procedures and guidelines.

Maintain confidentiality of information and adhere to data protection regulations.

Support and Development

Assist in the orientation and training of students and volunteers to the team.

Support continuous professional development initiatives for the neurodiversity team.

You will be required to use your initiative in all aspects of your work, to efficiently prioritise work and meet deadlines, as the service line requires.

Your duties will encompass regular liaison with the Neurodiversity Team Leader and Team.

Your dealings with matters relating to clients and staff is of a highly confidential nature and should not be divulged to another or discussed with other colleagues other than as necessary within the context of your role.

You will be responsible for ensuring compliance with Trust policies and local protocols for Data Protection, Health and Safety, Security and Fire Safety within the administration team.

Person Specification

Attributes/skills

Essential

  • Good standard of education - equivalent of 5 GCSEs including Maths and English
  • Excellent communication skills, in person and on the phone/video calls.
  • Computer literate, with extensive keyboard skills
  • Good knowledge and proficiency of Microsoft packages to include Word, Excel, PowerPoint, Outlook
  • Ability to prioritise tasks effectively and under pressure.

Desirable

  • Further learning relating to Neurodiversity.
  • Previous experience working or volunteering in a similar role
  • Proficiency in Trust systems including Rio, and Healthroster
  • Knowledge of NHS service provision including pathway of care.
  • Experience of supporting the neurodivergent community either professionally or voluntarily.
  • Knowledge of another language/languages (sufficient to converse with parents of that language)
Person Specification

Attributes/skills

Essential

  • Good standard of education - equivalent of 5 GCSEs including Maths and English
  • Excellent communication skills, in person and on the phone/video calls.
  • Computer literate, with extensive keyboard skills
  • Good knowledge and proficiency of Microsoft packages to include Word, Excel, PowerPoint, Outlook
  • Ability to prioritise tasks effectively and under pressure.

Desirable

  • Further learning relating to Neurodiversity.
  • Previous experience working or volunteering in a similar role
  • Proficiency in Trust systems including Rio, and Healthroster
  • Knowledge of NHS service provision including pathway of care.
  • Experience of supporting the neurodivergent community either professionally or voluntarily.
  • Knowledge of another language/languages (sufficient to converse with parents of that language)

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Employer details

Employer name

North Middlesex University Hospital NHS Trust

Address

St Michael's

Cedar House, Gater Drive

London

N2 0JB


Employer's website

https://www.northmid.nhs.uk/ (Opens in a new tab)

Employer details

Employer name

North Middlesex University Hospital NHS Trust

Address

St Michael's

Cedar House, Gater Drive

London

N2 0JB


Employer's website

https://www.northmid.nhs.uk/ (Opens in a new tab)

For questions about the job, contact:

Service Lead ND Pathway

Helen Cooke

helencooke2@nhs.net

Date posted

08 January 2025

Pay scheme

Agenda for change

Band

Band 4

Salary

£26,530 to £29,114 a year pro-rata per annum inclusive of HCAs

Contract

Permanent

Working pattern

Part-time

Reference number

393-NMUH-2068

Job locations

St Michael's

Cedar House, Gater Drive

London

N2 0JB


Supporting documents

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