Job summary
The successful appointee will be expected to have a clinical and research role within the EDS service. They will see patients under supervision of the EDS consultants to develop their learning and training in EDS and related inherited connective tissue conditions. They will also be involved in research regarding in rare, monogenic EDS under the supervision of the EDS lead.
Main duties of the job
This post is a full-time, fixed term post delivering clinics & research involving regarding rare, monogenic EDS and requires a strong interest/experience of the candidate in inherited connective tissue conditions. It is suitable for registrar level clinicians in Rheumatology, Clinical Genetics, Cardiology, Dermatology or other relevant specialities including vascular surgery. The main base for the post will be the EDS service at London North West University Healthcare NHS Trust.
oThe successful applicant will, after a period of observing clinics, be responsible for preparing the information for the following week's clinics and will begin seeing patients in the EDS service independently with supervision. On average, the successful candidate will be expected to carry out 2 clinics per week.
oDepending on previous experience, a period of observation of consultations will introduce the successful applicant to the techniques of clinical assessment including examination, genetic counselling, pedigree drawing and risk estimation. The applicant will also discuss cases with genetic counsellors to develop counselling skills.
oThe successful applicant will attend clinical meetings and MDTs and contribute to the presentation and discussion of complex cases.
oThe successful applicant will contribute to recruiting to the neEDS study, scientific publications in the EDS service and preparation of grant applications.
About us
London North West University Healthcare NHS Trust (LNWH) cares for the people of Brent, Ealing, Harrow and beyond.
Our team of more than 8,200 clinical and support staff serve a diverse population of almost one million people.
We run major acute services at:
- Northwick Park Hospital: home to one of the busiest emergency departments (A&E) in the country. The hospital provides a full range of services including the country's top-rated hyper-acute stroke unit and one of only three hyper-acute rehabilitation units in the UK
- St Mark's Hospital: an internationally renowned specialist centre for bowel disease
- Ealing Hospital: a busy district general hospital providing a range of clinical services, as well as 24/7 emergency department and urgent care centre, and specialist care at Meadow House Hospice
- Central Middlesex Hospital: our planned care site, hosting a range of surgical and outpatient services and collocated with an urgent care centre.
We are a university teaching NHS trust, in recognition of the important role we play in training clinicians of the future and bringing the benefits of research to the public.
Job description
Job responsibilities
Draft job plan for full-time post (negotiable)
Completed by: Dr Fleur van Dijk & Dr Neeti Ghali
Date: 06/11/25
MORNING
AFTERNOON
MONDAY
EDS out-patient clinic
EDS clinical work
TUESDAY
Research
Research
WEDNESDAY
Clinical team meeting to discuss cases, variants, research MDT etc
EDS admin
THURSDAY
Research/clinical admin
Research/translational work
FRIDAY
EDS out-patient clinic
EDS clinical work
This is a provisional job plan and will be mutually agreed with the Integrated clinical services.
On occasion and as patterns of service provision evolve and change, further rescheduling of clinical sessions may take place following negotiation with the service and clinical director.
Job description
Job responsibilities
Draft job plan for full-time post (negotiable)
Completed by: Dr Fleur van Dijk & Dr Neeti Ghali
Date: 06/11/25
MORNING
AFTERNOON
MONDAY
EDS out-patient clinic
EDS clinical work
TUESDAY
Research
Research
WEDNESDAY
Clinical team meeting to discuss cases, variants, research MDT etc
EDS admin
THURSDAY
Research/clinical admin
Research/translational work
FRIDAY
EDS out-patient clinic
EDS clinical work
This is a provisional job plan and will be mutually agreed with the Integrated clinical services.
On occasion and as patterns of service provision evolve and change, further rescheduling of clinical sessions may take place following negotiation with the service and clinical director.
Person Specification
Registration
Essential
Qualifications
Essential
- oMBBS or equivalent medical qualification
- oBe eligible to work in the UK
Desirable
- oFull MRCP (UK) or full MRCPCH at the time of application
- oIntercalated BSc or equivalent
Knowledge and Expertise
Essential
- oIs up to date and fit to practise safely.
- oEvidence of experience in adult medicine/paediatric medicine
- oProven experience in clinical research
Desirable
- oExperience of managing patients with EDS and/or inherited connective tissue conditions
Teaching
Essential
- oExperience of teaching and training undergraduates, postgraduates and junior medical staff
Desirable
- oEvidence of ongoing interest and achievement in research
Management and Audit
Essential
- oUnderstanding the principles of clinical governance and its implications
- oAbility to organise and prioritise workload effectively.
- oAbility to organise research and work within research governance procedures
- oAbility to plan strategically and to exercise sound judgements when faced with conflicting pressures.
- oIT skills and computer literacy
- oUnderstanding and experience of audit
Desirable
- oManagement qualification or current study towards management qualification.
- oEvidence of service audit, design or change management.
Research/ publications
Essential
- oKnowledge of research methodology
Desirable
- oTraining in research methodology.
- oPublications in peer review journals
- oPresentations to learned societies
Language
Essential
- oAre able to speak and write English to the appropriate standard necessary to fulfil the job requirements
Personal skills
Essential
- oEnergy and enthusiasm and the ability to work under pressure.
- oCommitment to deliver a high-quality service with patient welfare at forefront of practice
- oCaring attitude to patients.
- oAbility to communicate effectively with colleagues, patients, relatives, GPs, nurses and other staff and agencies.
- oAbility to use own initiative and work independently and as part of a team, as required.
- oAbility to work under pressure while maintaining a high degree of accuracy.
- oAn open, flexible, and positive approach to working in a small team of experts
- oCommitment to Continuing Medical Education and Professional Development.
Person Specification
Registration
Essential
Qualifications
Essential
- oMBBS or equivalent medical qualification
- oBe eligible to work in the UK
Desirable
- oFull MRCP (UK) or full MRCPCH at the time of application
- oIntercalated BSc or equivalent
Knowledge and Expertise
Essential
- oIs up to date and fit to practise safely.
- oEvidence of experience in adult medicine/paediatric medicine
- oProven experience in clinical research
Desirable
- oExperience of managing patients with EDS and/or inherited connective tissue conditions
Teaching
Essential
- oExperience of teaching and training undergraduates, postgraduates and junior medical staff
Desirable
- oEvidence of ongoing interest and achievement in research
Management and Audit
Essential
- oUnderstanding the principles of clinical governance and its implications
- oAbility to organise and prioritise workload effectively.
- oAbility to organise research and work within research governance procedures
- oAbility to plan strategically and to exercise sound judgements when faced with conflicting pressures.
- oIT skills and computer literacy
- oUnderstanding and experience of audit
Desirable
- oManagement qualification or current study towards management qualification.
- oEvidence of service audit, design or change management.
Research/ publications
Essential
- oKnowledge of research methodology
Desirable
- oTraining in research methodology.
- oPublications in peer review journals
- oPresentations to learned societies
Language
Essential
- oAre able to speak and write English to the appropriate standard necessary to fulfil the job requirements
Personal skills
Essential
- oEnergy and enthusiasm and the ability to work under pressure.
- oCommitment to deliver a high-quality service with patient welfare at forefront of practice
- oCaring attitude to patients.
- oAbility to communicate effectively with colleagues, patients, relatives, GPs, nurses and other staff and agencies.
- oAbility to use own initiative and work independently and as part of a team, as required.
- oAbility to work under pressure while maintaining a high degree of accuracy.
- oAn open, flexible, and positive approach to working in a small team of experts
- oCommitment to Continuing Medical Education and Professional Development.
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
UK Registration
Applicants must have current UK professional registration. For further information please see
NHS Careers website (opens in a new window).
Additional information
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
UK Registration
Applicants must have current UK professional registration. For further information please see
NHS Careers website (opens in a new window).
Employer details
Employer name
London North West University Healthcare NHS Trust
Address
Ehlers Danlos Diagnostic Service, St Mark's & Northwick Park Hospitals, Level 8
Watford Road
Harrow
HA1 3UJ
Employer's website
https://www.lnwh.nhs.uk (Opens in a new tab)
