Job summary
Do you want to contribute to a world-leading cancer register on children and young people, assessing long-term health and social outcomes? Do you have exceptional data collection and clinical coding skills and are you looking for the next challenge? Are you able to juggle multiple tasks and see them through to completion?
You will manage all aspects of data collection for the cancer registration process for the Yorkshire Specialist Register of Cancer in Children and Young People ensuring data are accurately stored and available for statistical analysis and reporting. You will have responsibility for collecting high quality demographic and coding clinical data for all new registrations from 16 different acute hospital Trusts across the Yorkshire and the Humber geographical area; approximately 400 new registrations are made annually. This will involve liaison with a wide range of people and services across the NHS including the National Cancer Registration and Analysis Service (NCRAS), patient medical records, data/IT managers and research nurses.
Main duties of the job
We are seeking a Data Collection & Clinical Coding Co-ordinator to join our team. You should significant hands-on experience of clinical data collection or coding in the NHS or research sector. You will have good IT skills to manage and process electronic data feeds from multiple providers. Responsibility for data quality, completeness and timeliness is integral to the position. Therefore, excellent attention to detail and self-management skills for planning and prioritising are essential. Strong communication skills are essential for the role when liaising with NHS Trusts to abstract cancer registration data.
You will be based within the Yorkshire Register research group which carries out a programme of epidemiology and applied health research, including the impact of treatment on cancer survival and other clinical outcomes. You will assist the Registry Statistician and Data Managers with data cleaning and quality assurance and support the process for ethical and regulatory approval. Occasional travel is required to visit designated hospitals for the abstraction of data from patients medical records.
About us
Working at Leeds
We are a campus based community and regular interaction with campus is an expectation of all roles in line with academic and service needs and the requirements of the role. We are also open to discussing flexible working arrangements. To find out more about the benefits of working at the University and what it is like to live and work in the Leeds area visit our Working at Leeds information page.
Our University
As an international research-intensive university, we welcome students and staff from all walks of life. We foster an inclusive environment where all can flourish and prosper, and we are proud of our strong commitment to student education. Within the School of Medicine, we are dedicated to diversifying our community and we welcome the unique contributions that individuals can bring, and particularly encourage applications from, but not limited to Black, Asian, people who belong to a minority ethnic community; people who identify as LGBT+; and disabled people. Candidates will always be selected based on merit and ability.
Information for disabled candidates
Information for disabled candidates, impairments or health conditions, including requesting alternative formats, can be found on our Accessibility information page or by getting in touch with us athr@leeds.ac.uk
Job description
Job responsibilities
As a Data Collection and Clinical Coding Co-ordinator, your main duties will include:
- Overseeing clinical and socio-demographic data collection including co-ordinating the receipt and validation of electronic datasets and preparing data for registration, occasionally requiring visits to designated hospitals;
- Maintaining regular contact with paediatric and Teenage and Young Adult oncology departments in Leeds, Sheffield and all other NHS Trusts in Yorkshire to ensure all eligible cancer registration records are complete and up-to-date;
- Manage regular data cross-checks with the NCRAS, Haematological Malignancy Research Network (York) and neuropathology (Leeds General Infirmary).
- Carrying out duties in accordance with relevant guidelines and protocols and ensuring relevant governance and ethical rules are adhered to;
- Reviewing and developing procedures and guidelines relating to data entry/clinical coding, validation and extraction;
- Monitoring changes in cancer coding systems (e.g. ICD-O, staging) and working with the Register Data Managers to assimilate these into the database;
- Organising the production of regular reports on data quality for meetings and/or the team as requested;
- Supporting the delivery of day-to-day research activity relevant to the Registry, maintaining relevant project documentation e.g. data collection Standard Operating Procedures.
Job description
Job responsibilities
As a Data Collection and Clinical Coding Co-ordinator, your main duties will include:
- Overseeing clinical and socio-demographic data collection including co-ordinating the receipt and validation of electronic datasets and preparing data for registration, occasionally requiring visits to designated hospitals;
- Maintaining regular contact with paediatric and Teenage and Young Adult oncology departments in Leeds, Sheffield and all other NHS Trusts in Yorkshire to ensure all eligible cancer registration records are complete and up-to-date;
- Manage regular data cross-checks with the NCRAS, Haematological Malignancy Research Network (York) and neuropathology (Leeds General Infirmary).
- Carrying out duties in accordance with relevant guidelines and protocols and ensuring relevant governance and ethical rules are adhered to;
- Reviewing and developing procedures and guidelines relating to data entry/clinical coding, validation and extraction;
- Monitoring changes in cancer coding systems (e.g. ICD-O, staging) and working with the Register Data Managers to assimilate these into the database;
- Organising the production of regular reports on data quality for meetings and/or the team as requested;
- Supporting the delivery of day-to-day research activity relevant to the Registry, maintaining relevant project documentation e.g. data collection Standard Operating Procedures.
Person Specification
Qualifications
Essential
- Substantial experience of clinical data collection and/or coding, data cleaning and validation.
- The ability to identify and extract data from clinical records which contain complex medical terminology.
- Good IT skills including MS Outlook, Excel, Word and an aptitude for data-handling specifically collecting and manipulating data in Excel and an understanding of GDPR in relation to transfer of data.
- Excellent organisational and self-management skills for planning, prioritising and organising own work to tight deadlines
- The ability to work methodically with accuracy and attention to detail.
- Self-motivation and enthusiasm with the ability to work on own initiative and under pressure without close supervision.
- The ability to work within a multi-disciplinary team and foster good working relationships with health professionals.
- The ability to exercise personal initiative and responsibility and to use own judgement to solve problems.
- Excellent verbal and written communication skills including dealing with enquiries and producing reports.
Desirable
- Experience of working in an NHS data collection/clinical audit team, disease registry or research environment.
- Experience of cancer terminology and cancer coding systems.
- Experience of medical research and/or cancer registration
- Knowledge of electronic data entry systems, e.g. REDCap.
- Knowledge of NHS infrastructure including research passport and honorary contract approval processes.
- A current full UK driving license to visit medical record sites which may be inaccessible via public transport.
Person Specification
Qualifications
Essential
- Substantial experience of clinical data collection and/or coding, data cleaning and validation.
- The ability to identify and extract data from clinical records which contain complex medical terminology.
- Good IT skills including MS Outlook, Excel, Word and an aptitude for data-handling specifically collecting and manipulating data in Excel and an understanding of GDPR in relation to transfer of data.
- Excellent organisational and self-management skills for planning, prioritising and organising own work to tight deadlines
- The ability to work methodically with accuracy and attention to detail.
- Self-motivation and enthusiasm with the ability to work on own initiative and under pressure without close supervision.
- The ability to work within a multi-disciplinary team and foster good working relationships with health professionals.
- The ability to exercise personal initiative and responsibility and to use own judgement to solve problems.
- Excellent verbal and written communication skills including dealing with enquiries and producing reports.
Desirable
- Experience of working in an NHS data collection/clinical audit team, disease registry or research environment.
- Experience of cancer terminology and cancer coding systems.
- Experience of medical research and/or cancer registration
- Knowledge of electronic data entry systems, e.g. REDCap.
- Knowledge of NHS infrastructure including research passport and honorary contract approval processes.
- A current full UK driving license to visit medical record sites which may be inaccessible via public transport.
