Job summary
Guy's and St Thomas' NHS Foundation Trust is a leading center for patients with complex multisystem diseases. We are looking for an enthusiastic, dynamic and experienced registered paediatric or learning disabilities nurse with a passion for transition and improving the quality of life for young people with complex needs.
The post is part of a centrally funded National Highly Specialist Service for patients who have a rare genetic disorder known as Bardet-Biedl Syndrome (BBS), a multisystem progressive disorder affecting vision, learning and associated with obesity as well as renal and endocrine disorders.
The National BBS Service funded by NHSE is now in its 13th year and continues to grow in calibre and in the delivery of novel service delivery pathways in close partnership with the BBS Support group (BBS UK) who are an integral part of the service. We have seen a significant increase in our workload as direct result of improved genetic diagnosis and the enhanced need for specialist care.
Monthly clinics are held at the Rare Disease Centre (RDC) at St Thomas. In addition to the face to face clinics, we also hold regular Telemedicine clinics to see patients selectively triaged who are well enough to be seen remotely prior to seeing them in the face-to-face MDT service. The service aims to provide a multidisciplinary approach jointly managing all patients in the South West and South East in partnership with their local Consultants and care teams facilitated by a Nurse-led Outreach Network.
Closing date: 17th September 2023
Interview date: 27th Sept 2023
Main duties of the job
This is a new substantive post, based at GSTT, to join an existing part-time Nurse Specialist for the Transition and Adult clinics at St Thomas Hospital and with the aim of working cross-site supporting the Paediatric Bardet-Biedl service at Great Ormond Street following a period of training.
This role is well suited to a motivated, organised individual wishing to develop his/her specialist skills and manage a cohort of patients with complex multisystem disorder. This role will be well suited to someone who can be flexible and accommodating whilst supporting families to manage the day to day aspects of their conditions. You will need excellent interpersonal, communication and strong patient advocacy skills in order to build and maintain relationships with patients, families and local community and clinical teams.
This role will enable you expand your professional and personal boundaries, enhance autonomous and expert clinical practice, leadership and evidence based practice whilst being part of a dedicated and multidisciplinary clinical team in supporting complex decision making and improving outcomes for patients
Due to the rare nature of these conditions we do not expect that the successful applicant will have experience of BBS.
This post will provide an ideal opportunity to consolidate clinical, research, management and leadership skills whilst facilitating effective care and support to this patient group. The post-holder will have a unique opportunity to further develop and shape this aspect of national service.
Experience of working autonomously and/or nursing within a community setting is essential to undertake this role.
About us
Guy's and St Thomas' is among the UK's busiest and most successful NHS foundation trusts. We provide a full range of hospital and community services for people in south London and as well as specialist care for patients from further afield including cancer, renal, orthopaedic, respiratory and cardiovascular services.
We have a reputation for clinical excellence and high quality teaching and research. We are part of King's Health Partners, one of eight accredited UK academic health sciences centres. In partnership with King's College London we have dedicated clinical research facilities and a National Institute for Health Research (NIHR) Biomedical Research Centre.
The commitment of our 23,500 staff is key to our success. We are one of the largest local employers and we aim to develop and support all our staff so they are able to deliver high quality, safe and efficient care. The 2019 NHS staff survey results show that we have one of the most engaged and motivated workforces in the NHS. We know this has a positive impact on the care provided to our patients.
We have one of the most ambitious capital investment programmes anywhere in the NHS.
Job description
Job responsibilities
We are an integral part of the Rare Disease Centre (RDC) at St Thomas where the monthly clinics are held. The RDC is a unique space developed with Trust and Charitable support and with key input from the BBS patients. Its purpose is to house highly specialist clinics with state-of-the-art facilities designed in partnership with paediatric and adult patients and their families to accommodate their specialist needs. This provides excellent opportunities to train clinicians and scientists in genomic medicine, and allows us to attract the best clinicians, nurses, trainees and clinical scientists.
In addition to the monthly face to face clinics in the RDC we also hold regular Telemedicine clinics to see patients selectively triaged who are well enough to be seen remotely prior to seeing them in the face-to-face MDT service
This is a new post to join an existing CNS who works cross site to support the paediatric service (at GOSH) and the Transition and Adult clinics at St Thomas Hospital. This role is well suited to a motivated, organised individual wishing to develop his/her specialist skills and manage a cohort of patients with complex multisystem disorder.
The service aims to jointly manage all the patients in the South West and South East of England in partnership with their local Consultants and care teams. There are two parts to the service as specified by the Highly Specialist BBS Service Specification:
- The central multidisciplinary service at St Thomas (Genetics, General Medicine, Ophthalmology, Dietetics, Renal specialist, Endocrinology and Clinical Psychology)
- The Nurse-led Outreach Network: The Post Holder will work with the rest of the BBS team and with local Consultants and GPs to ensure that patients and their families receive the right care during the periods between appointments at St Thomas.
The service is closely linked with and works in conjunction with the BBS UK, the patient support group :
https://bbsuk.org.uk/
https://bbsuk.org.uk/about-bbs-uk/bardet-biedl-syndrome/
https://bbsuk.org.uk/bbs-uk-publications/
For further information please contact Dr Shehla Mohammed (GSTT Lead for BBS Service, shehla.mohammed@gstt.nhs.uk) or Kath Sparks (Clinical Nurse Specialist, kathryn.sparks@gstt.nhs.uk) to discuss
Job description
Job responsibilities
We are an integral part of the Rare Disease Centre (RDC) at St Thomas where the monthly clinics are held. The RDC is a unique space developed with Trust and Charitable support and with key input from the BBS patients. Its purpose is to house highly specialist clinics with state-of-the-art facilities designed in partnership with paediatric and adult patients and their families to accommodate their specialist needs. This provides excellent opportunities to train clinicians and scientists in genomic medicine, and allows us to attract the best clinicians, nurses, trainees and clinical scientists.
In addition to the monthly face to face clinics in the RDC we also hold regular Telemedicine clinics to see patients selectively triaged who are well enough to be seen remotely prior to seeing them in the face-to-face MDT service
This is a new post to join an existing CNS who works cross site to support the paediatric service (at GOSH) and the Transition and Adult clinics at St Thomas Hospital. This role is well suited to a motivated, organised individual wishing to develop his/her specialist skills and manage a cohort of patients with complex multisystem disorder.
The service aims to jointly manage all the patients in the South West and South East of England in partnership with their local Consultants and care teams. There are two parts to the service as specified by the Highly Specialist BBS Service Specification:
- The central multidisciplinary service at St Thomas (Genetics, General Medicine, Ophthalmology, Dietetics, Renal specialist, Endocrinology and Clinical Psychology)
- The Nurse-led Outreach Network: The Post Holder will work with the rest of the BBS team and with local Consultants and GPs to ensure that patients and their families receive the right care during the periods between appointments at St Thomas.
The service is closely linked with and works in conjunction with the BBS UK, the patient support group :
https://bbsuk.org.uk/
https://bbsuk.org.uk/about-bbs-uk/bardet-biedl-syndrome/
https://bbsuk.org.uk/bbs-uk-publications/
For further information please contact Dr Shehla Mohammed (GSTT Lead for BBS Service, shehla.mohammed@gstt.nhs.uk) or Kath Sparks (Clinical Nurse Specialist, kathryn.sparks@gstt.nhs.uk) to discuss
Person Specification
Education/Qualifications
Essential
- RCN registered Children's Nurse
- Your professional knowledge acquired at degree level will be supplemented by specialist training, experience and short courses to Masters level or equivalent.
- Post registration qualification
Desirable
- Evidence of ongoing, dynamic continuing professional development linked to demonstrable clinical competencies
Experience
Essential
- Experience of working autonomously at an advanced level within a relevant specialist area. e.g. community paediatrics, ability to take charge of a department
- Experience of leading and managing a team of nurses
- Experience of complex case and multidisciplinary working both personally and as a facilitator
- Ability to work effectively within teams, and to take a leadership role when required
- Evidence of ability and experience of good self organisation skills.
- Previous experience of research and audit
- Experience of handling clinical incidents and complaints
Knowledge
Essential
- Good verbal, written, interpersonal & communication skills
- Able to use skills of history taking and physical assessment to direct patient care
- Good time management and organisational skills
- Willingness and ability to travel within the UK as part of the job for conference attendances and audit meetings with NHSE
- Ability to critically analyse data, problem solve and initiate change
- Ability to carry out audit and research
- Good IT Skills: to be comfortable with the following/be willing to learn: -Using IT to organise your work: including use of spreadsheets. -Data storage: Using Spreadsheets and databases. -Communication: using Email, teleconferencing, shared documents, telephone etc to work effectively
- Good clinical, managerial and leadership skills
Desirable
- Phlebotomy and cannulation skills Training will be provided if required
Additional information
Essential
- Maturity/self awareness
- Enthusiasm & motivation
- Ability to manage and sustain change
- Diplomatic with the ability to work effectively across professional and organisational boundaries
Person Specification
Education/Qualifications
Essential
- RCN registered Children's Nurse
- Your professional knowledge acquired at degree level will be supplemented by specialist training, experience and short courses to Masters level or equivalent.
- Post registration qualification
Desirable
- Evidence of ongoing, dynamic continuing professional development linked to demonstrable clinical competencies
Experience
Essential
- Experience of working autonomously at an advanced level within a relevant specialist area. e.g. community paediatrics, ability to take charge of a department
- Experience of leading and managing a team of nurses
- Experience of complex case and multidisciplinary working both personally and as a facilitator
- Ability to work effectively within teams, and to take a leadership role when required
- Evidence of ability and experience of good self organisation skills.
- Previous experience of research and audit
- Experience of handling clinical incidents and complaints
Knowledge
Essential
- Good verbal, written, interpersonal & communication skills
- Able to use skills of history taking and physical assessment to direct patient care
- Good time management and organisational skills
- Willingness and ability to travel within the UK as part of the job for conference attendances and audit meetings with NHSE
- Ability to critically analyse data, problem solve and initiate change
- Ability to carry out audit and research
- Good IT Skills: to be comfortable with the following/be willing to learn: -Using IT to organise your work: including use of spreadsheets. -Data storage: Using Spreadsheets and databases. -Communication: using Email, teleconferencing, shared documents, telephone etc to work effectively
- Good clinical, managerial and leadership skills
Desirable
- Phlebotomy and cannulation skills Training will be provided if required
Additional information
Essential
- Maturity/self awareness
- Enthusiasm & motivation
- Ability to manage and sustain change
- Diplomatic with the ability to work effectively across professional and organisational boundaries
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
UK Registration
Applicants must have current UK professional registration. For further information please see
NHS Careers website (opens in a new window).
Additional information
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
UK Registration
Applicants must have current UK professional registration. For further information please see
NHS Careers website (opens in a new window).
