Job summary
An
exciting opportunity has arisen at the hospice for a research lead and data
manager to work with the specialist palliative care team and wider hospice
teams at Shooting Star Childrens Hospices (SSCH). Research is at the core of
the services that we offer, and the successful applicant will be required to work
with the Research Governance group to continue to develop our research programme,
strategy and with the clinical teams service development and data management
projects
Main duties of the job
Be
a professional role model and research champion for the organisation.
Lead
and coordinate research ensuring a research culture within the hospice.
Take
responsibility and accountability for research studies.
Provide
specialist advice to support and facilitate high quality research in
collaboration with the research governance group and multi professional team.
Facilitate
the development of staff research knowledge and skills.
Provide
an innovative and progressive attitude to the continual improvement of
Child/Young Person (CYP) care through research and evidence-based practice.
Take responsibility for ensuring that any
personal data used for research purposes is handled in line with the Data
protection Act and its principles.
About us
Shooting Star Childrens Hospices is a leading childrens hospice charity caring for babies, children and young people with life-limiting conditions, and their families, across west London and Surrey. In fact, the Care Quality Commission have rated our hospice in Guildford Outstanding.
Job description
Job responsibilities
An exciting opportunity has
arisen at the hospice for a research lead and data manager to work with the
specialist palliative care team and wider hospice teams at Shooting Star
Childrens Hospices (SSCH). Research is at the core of the services that we offer,
and the successful applicant will be required to work with the Research Governance
group to continue to develop our research programme, strategy and with the
clinical teams service development and data management projects.
Scope of the Role
-
Be
a professional role model and research champion for the organisation.
-
Lead
and coordinate research ensuring a research culture within the hospice.
-
Take
responsibility and accountability for research studies.
-
Provide
specialist advice to support and facilitate high quality research in
collaboration with the research governance group and multi professional team.
-
Facilitate
the development of staff research knowledge and skills.
-
Provide
an innovative and progressive attitude to the continual improvement of
Child/Young Person (CYP) care through research and evidence-based practice.
-
Take responsibility for ensuring that any
personal data used for research purposes is handled in line with the Data
protection Act and its principles.
Key Working relationships
-
Director
of Care
-
Nurse
Consultant
-
Medical
Director / Consultant in Paediatric Palliative Medicine / Hospice GPs
-
Head
of Hospice Services
-
Head
of Family Support Team
-
Practice
Education and Quality Team
-
Research
Governance Group
-
Trustees
for Care
-
Hospice
care teams organisation wide
-
Safeguarding
adults and children Team
-
Multidisciplinary
Teams
-
Children,
Young People, their Families
-
Research
colleagues from external settings
Main duties and responsibilities
Research:
-
To
be responsible for the day to day coordination and administration of research
projects
-
To
participate in the design and preparation of research studies/trials, research
ethic committee submissions, patient information sheets and other documentation
ensuring that these are reviewed and updated as required.
-
To
carry out and assist in data collection (including qualitative interviewing
techniques) for research
projects with CYP and/or their families.
-
To design and maintain databases (e.g. using
MACRO) and to use specialist statistical packages as appropriate (e.g. SPSS)
for the analysis of research data in liaison and consultation with the research
group.
-
To
prepare reports and presentations for review meetings and progress of research
projects.
-
To
comply with research study protocols, standard operational procedures and Hospice
/ Trust policies related to data security, confidentiality and health and
safety.
-
Be
involved with the financial processes associated with coordinating research
studies and grant applications.
-
To present research findings in the form of
published papers, reports, presentations or summaries internally, nationally
and internationally.
-
Act
as a resource to staff and contribute to their professional and educational
development Act as expert resource for staff and researchers preparing
submissions for regulatory approval.
-
To
support projects for the specialist service (3 days) and the wider hospice (2
days).
-
To
support the development and compliance of research governance infrastructure in
the organisation.
-
To
ensure the hospice can be a collaborative partner in national research projects
and engage meaningfully with the national paediatric palliative care research
agenda.
-
Report
any poor research processes that compromise patient safety and study protocols.
-
To ensure that all research is documented, and that
all relevant documentation is completed accurately and within agreed timescales
using Shooting Star Childrens Hospices approved documentation in line with
NMC, CQC and Shooting Star Childrens Hospice standards.
-
To lead and take decisions on requests from externals
teams for Shooting Star to participate within their research in consultation
with the Research Governance Group.
Service development:
-
To
participate in the parent involvement/research advisory group.
-
To
undertake presentations and teaching with multi-disciplinary staff to a variety
of audiences as required and lead journal club.
-
To
assist in the design and implementation of service development projects as
pertinent to the role, following policies
-
To
undertake project management, including audit and service evaluation, with
colleagues within the care teams to help develop and improve services to
patients and their families.
-
To
undertake evidence-based literature searches and reviews to assist the Care
teams in implementing evidence-based practice.
-
To
be active in the research strategy, plan and lead stakeholder events.
Data
management:
-
To
collect, analyse and present data for all parts of the SSCH care services.
-
To
use computer-based applications e.g. excel, PowerPoint for entry, analysis and
presentation of data.
-
To
create quarterly reports of service data and present to relevant teams for
service monitoring and development and to the SSCH clinical governance group
Other:
-
To
maintain up to date knowledge of legislation, national and local policies and
issues in relation to the role.
-
Taking
part in regular appraisal and maintaining an active engagement with current
developments in the field of paediatric palliative care and related disciplines.
-
To
undertake relevant training on advanced communication skills and data
collection methods as required.
-
To
plan and organise own workload, including research, group and individual work.
-
Contribute
to monitoring of consent procedures
-
Participate
in local, regional and national forums and networks related to clinical
research and the nurses role
-
Ensure
that processes and procedures for ensuring participant confidentiality are
developed and adhered to in line with the Data Protection Act
-
Act as an ambassador for Shooting Star Childrens
Hospices
-
Participate in events or publications that promote SSCH
and childrens hospice/palliative care
Education:
- To foster an environment conducive to learning, enquiry, and research
- Act as a resource to staff, contributing to the professional and
educational development their research knowledge and skills
- Maintain own professional development and mandatory training
Professional:
- To maintain confidentiality surrounding the child / young person and
their family at all times
- To undertake further training and academic qualification as relevant to
the role and service requirements
Job description
Job responsibilities
An exciting opportunity has
arisen at the hospice for a research lead and data manager to work with the
specialist palliative care team and wider hospice teams at Shooting Star
Childrens Hospices (SSCH). Research is at the core of the services that we offer,
and the successful applicant will be required to work with the Research Governance
group to continue to develop our research programme, strategy and with the
clinical teams service development and data management projects.
Scope of the Role
-
Be
a professional role model and research champion for the organisation.
-
Lead
and coordinate research ensuring a research culture within the hospice.
-
Take
responsibility and accountability for research studies.
-
Provide
specialist advice to support and facilitate high quality research in
collaboration with the research governance group and multi professional team.
-
Facilitate
the development of staff research knowledge and skills.
-
Provide
an innovative and progressive attitude to the continual improvement of
Child/Young Person (CYP) care through research and evidence-based practice.
-
Take responsibility for ensuring that any
personal data used for research purposes is handled in line with the Data
protection Act and its principles.
Key Working relationships
-
Director
of Care
-
Nurse
Consultant
-
Medical
Director / Consultant in Paediatric Palliative Medicine / Hospice GPs
-
Head
of Hospice Services
-
Head
of Family Support Team
-
Practice
Education and Quality Team
-
Research
Governance Group
-
Trustees
for Care
-
Hospice
care teams organisation wide
-
Safeguarding
adults and children Team
-
Multidisciplinary
Teams
-
Children,
Young People, their Families
-
Research
colleagues from external settings
Main duties and responsibilities
Research:
-
To
be responsible for the day to day coordination and administration of research
projects
-
To
participate in the design and preparation of research studies/trials, research
ethic committee submissions, patient information sheets and other documentation
ensuring that these are reviewed and updated as required.
-
To
carry out and assist in data collection (including qualitative interviewing
techniques) for research
projects with CYP and/or their families.
-
To design and maintain databases (e.g. using
MACRO) and to use specialist statistical packages as appropriate (e.g. SPSS)
for the analysis of research data in liaison and consultation with the research
group.
-
To
prepare reports and presentations for review meetings and progress of research
projects.
-
To
comply with research study protocols, standard operational procedures and Hospice
/ Trust policies related to data security, confidentiality and health and
safety.
-
Be
involved with the financial processes associated with coordinating research
studies and grant applications.
-
To present research findings in the form of
published papers, reports, presentations or summaries internally, nationally
and internationally.
-
Act
as a resource to staff and contribute to their professional and educational
development Act as expert resource for staff and researchers preparing
submissions for regulatory approval.
-
To
support projects for the specialist service (3 days) and the wider hospice (2
days).
-
To
support the development and compliance of research governance infrastructure in
the organisation.
-
To
ensure the hospice can be a collaborative partner in national research projects
and engage meaningfully with the national paediatric palliative care research
agenda.
-
Report
any poor research processes that compromise patient safety and study protocols.
-
To ensure that all research is documented, and that
all relevant documentation is completed accurately and within agreed timescales
using Shooting Star Childrens Hospices approved documentation in line with
NMC, CQC and Shooting Star Childrens Hospice standards.
-
To lead and take decisions on requests from externals
teams for Shooting Star to participate within their research in consultation
with the Research Governance Group.
Service development:
-
To
participate in the parent involvement/research advisory group.
-
To
undertake presentations and teaching with multi-disciplinary staff to a variety
of audiences as required and lead journal club.
-
To
assist in the design and implementation of service development projects as
pertinent to the role, following policies
-
To
undertake project management, including audit and service evaluation, with
colleagues within the care teams to help develop and improve services to
patients and their families.
-
To
undertake evidence-based literature searches and reviews to assist the Care
teams in implementing evidence-based practice.
-
To
be active in the research strategy, plan and lead stakeholder events.
Data
management:
-
To
collect, analyse and present data for all parts of the SSCH care services.
-
To
use computer-based applications e.g. excel, PowerPoint for entry, analysis and
presentation of data.
-
To
create quarterly reports of service data and present to relevant teams for
service monitoring and development and to the SSCH clinical governance group
Other:
-
To
maintain up to date knowledge of legislation, national and local policies and
issues in relation to the role.
-
Taking
part in regular appraisal and maintaining an active engagement with current
developments in the field of paediatric palliative care and related disciplines.
-
To
undertake relevant training on advanced communication skills and data
collection methods as required.
-
To
plan and organise own workload, including research, group and individual work.
-
Contribute
to monitoring of consent procedures
-
Participate
in local, regional and national forums and networks related to clinical
research and the nurses role
-
Ensure
that processes and procedures for ensuring participant confidentiality are
developed and adhered to in line with the Data Protection Act
-
Act as an ambassador for Shooting Star Childrens
Hospices
-
Participate in events or publications that promote SSCH
and childrens hospice/palliative care
Education:
- To foster an environment conducive to learning, enquiry, and research
- Act as a resource to staff, contributing to the professional and
educational development their research knowledge and skills
- Maintain own professional development and mandatory training
Professional:
- To maintain confidentiality surrounding the child / young person and
their family at all times
- To undertake further training and academic qualification as relevant to
the role and service requirements
Person Specification
Qualifications
Essential
- Educated to postgraduate degree level in an appropriate science (MSc minimum)
Experience
Essential
- - Experience of working and interacting with research participants.
- - Experience of disseminating research findings.
Desirable
- -Experience of working with children and young people.
- - Up to date Good Clinical Practice training.
- -Experience of carrying out research in the NHS.
- -Experience of working in paediatric and/or palliative care research.
Skills Abilities/knowledge
Essential
- - Excellent administrative and organisational skills with the ability to meet deadlines.
- - Excellent IT skills including excel and power point
- - Excellent interpersonal and communication skills
- - Excellent time management and problem-solving skills
- - Ability to work with data sets
- - Ability to maintain adherence to written protocols and procedures
- - Evidence of teaching and presentation skills
- - Ability to manage projects and demonstrate leadership
Other Requirement
Essential
- - Flexibility to meet the needs of the service
- - Able to work across hospital and community settings to meet the needs of the role.
Person Specification
Qualifications
Essential
- Educated to postgraduate degree level in an appropriate science (MSc minimum)
Experience
Essential
- - Experience of working and interacting with research participants.
- - Experience of disseminating research findings.
Desirable
- -Experience of working with children and young people.
- - Up to date Good Clinical Practice training.
- -Experience of carrying out research in the NHS.
- -Experience of working in paediatric and/or palliative care research.
Skills Abilities/knowledge
Essential
- - Excellent administrative and organisational skills with the ability to meet deadlines.
- - Excellent IT skills including excel and power point
- - Excellent interpersonal and communication skills
- - Excellent time management and problem-solving skills
- - Ability to work with data sets
- - Ability to maintain adherence to written protocols and procedures
- - Evidence of teaching and presentation skills
- - Ability to manage projects and demonstrate leadership
Other Requirement
Essential
- - Flexibility to meet the needs of the service
- - Able to work across hospital and community settings to meet the needs of the role.
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
